Self-Management Today e-newsletter | Self Management Community

December 2010

Welcome

Welcome to our seventh issue of Self-Management Today and our final issue for 2010. To round off the year we have a report from the Department of Health on the success of this years' Self Care Week, lots of information from Staying Positive, and also an article on Ss2Q and course quality. In addition, we have a fun festive quiz so that you can test out your self-management knowledge.

On another note, have you had a chance to take a look at our new website www.selfmanagement.co.uk yet? Launched in last months' Self Care Week it is full of up to the minute information on all things self-management!

Finally, as this is our last issue of the year we would like to be the first to wish you all the best for the festive season.

Happy 1st Birthday to Self-Management Today!

We are pleased to be celebrating the 1st birthday of Self-Management Today. We are now on our seventh issue and have been running for one whole year. The Self-Management Today team would like to take this opportunity to thank everyone that has contributed to the newsletter, it's been a great year. We've heard what tutors are up to from as close as Wales to as far afield as Hong Kong. In addition, we have seen developments with a visit earlier in the year from Kate Lorig, an introduction to what the Quality Institute for Self-Management Education and Training (QISMET) are up to and also Caring with Confidence.

We hope to continue next year with more interesting articles for you and aim to keep on top of the changes within the self-management community. While we really hope you like what you have seen so far, we are not complacent. If you have any thoughts on what you like, don't like, would like to see more of, anything new you would like us to try or if you would like to contribute yourself then please get in touch. Our email address is admin@selfmanagement.co.uk or call 01225 731421.

Department of Health - Self Care Week 2010 Review

The Department of Health is celebrating the success of this years' Self Care Week, which took place from 15th to 21st November. Launched by Care Services Minister Paul Burstow, the week involved a range of national and local activities aimed at raising public awareness about the help and support available to help people take more responsibility for their own health and that of their families. From Dagenham to Doncaster, local GP practices and community organisations supported the week in lots of different ways. NHS Devon organised three exhibitions, two in local hospitals and one in a charity shop to encourage people with Long-Term Conditions and carers to attend self-management courses, which were well received by the public. Look out for the full review of events on the Department's Long-Term Conditions website http://www.dh.gov.uk/en/Publicationsandstatistics/Publications/PublicationsPolicyAndGuidance/DH_120988

On a separate note if you haven't already done so it's not too late to take part in the Choice and Information Revolution consultations which are currently ongoing and are due to finish on 14 January 2011. For more information please visit http://www.dh.gov.uk/en/Consultations/Liveconsultations/DH_120080

Manchester University research highlights what works in self care

By Cathy McMahon, Staying Positive Project Manager

A three year research project which evaluates support for children and young people with long-term health conditions has now been published. The research, led by Susan Kirk, School of Nursing, Midwifery and Social Work at Manchester University, involved an evidence synthesis of self care support models, mapping of the development of self care in England and case studies of six self care support models currently operating. Staying Positive was one of these case studies and professionals and young people involved supported the research by being interviewed about their experiences of the programme.

The research provides a valuable overview of approaches to self care for children and young people and identifies what works, how and in what circumstances. Feedback from the case study sites on the key elements of effective self care support highlighted four specific components:

Building a sense of community
Promoting independence and confidence
Developing knowledge and skills
Engaging children and young people

The policy and practice implications of the research are outlined and specifically highlight:

The need for generic self care policies and guidance to make specific reference to children and young people
The lack of information about investment across the country in self care support for children and young people
The need for commissioners to develop self care support strategies for children/young people and their families that include a range of programmes, resources and tools to meet individual needs.

The report is available to download free from: http://www.sdo.nihr.ac.uk/projdetails.php?ref=08-1715-162

Akiko and Fusae from Japan visited to learn about the Staying Positive Programme

By Dr Kathy Hawley, Author of the Staying Positive Programme

Akiko Kakinuma and Fusae Kondo Abbott are members of the team that brought the Chronic Disease Self-Management Programme (CDSMP) for adults to Japan. They visited the UK at the end of October (October 25 – 27) to learn about Staying Positive, the Self-Management Programme for young people.

During the three days Akiko and Fusae travelled from Oxford to Walsall, to Birmingham, and to Whitechapel and Loman Street in London. Through Dr. Hawley’s arrangements they met 2 participants, 5 facilitators, 3 trainers, 3 parents, 3 healthcare professionals, a consultant, and Cathy McMahon the Staying Positive Project Manager. They spent the time hearing about their experiences and opinions of the program and were very impressed with the passion and strong confidence expressed by the teenagers involved with it.

Akiko works for a non-profit organisation for patients with haemophilia, HIV, HBV, and HCV; and, for the past 4 years particularly on issues related to employment and independence of those patients. Because CDSMP is beneficial to adults with chronic conditions, Akiko strongly feels that young people with chronic conditions also would benefit from a self-management programme.

In 2009 Akiko received a several-year grant from the Japanese government to develop and study an independent support programme for children, as part of a study at the National Centre for Child Health and Development (http://www.ncchd.go.jp and http://www.ncchd.go.jp/English/english.pdf).

Akiko invited Fusae to work with her on this project. Fusae is the first Japanese master trainer and translated the CDSMP manuals and reference book into Japanese. She currently is a board member of the Japan Chronic Disease Self-Management Association (www.j-cdsm.org), which has been providing CDSMP workshops for adults in 13 prefectures since the inception of the association in 2006.

Akiko is planning to submit a proposal to the Japanese government to begin a self-management programme for children with chronic conditions. We wish them the very best of luck with their proposal.

From Stanford to Ss2Q

By Jane Cooper & Jean Thompson, Talking Health Network, www.talkinghealth.org

It is almost 20 years since Stanford University self-management programmes were first utlilised by voluntary sector organisations in the UK. Over this time staff and volunteers have developed a wealth of knowledge and expertise about the best way to develop, market, and implement Stanford programmes. In 2001 a coalition of organisations (across the NHS and third sector) and people living with long-term conditions initiated a process to develop Ss2Q, a quality assurance framework for the systematic development and implementation of the Chronic Disease Self-Management Course (CDSMC) and other Stanford programmes (www.selfcareconnect.org.uk). More recently, Stanford University has published a series of fidelity manuals that provide guidance to those responsible for developing and implementing Stanford small group programmes. (http://patienteducation.stanford.edu/licensing/).

Both Ss2Q and the Stanford fidelity manuals aim to support the provision of ‘quality’ community courses for people living with long-term conditions. It is essential that Tutors, Trainers and Coordinators are aware of this best practice wherever they are in their journey so that they can ensure that the courses they deliver to people living with long-term conditions in their local communities are the very best they can be. That is why the National Register has teamed up with the National T-Trainer Network, QISMET and the Talking Health Network to make available an overview of respective quality assurance and fidelity requirements of Ss2Q and Stanford University. The document called 'From Stanford to Ss2Q' details the respective quality documents, signposts to where they can be downloaded and most importantly highlights the additional requirements of Ss2Q in comparison to Stanford. This is especially important for organisations travelling to Stanford to attend Leader/Master training events who also want to work within the Ss2Q quality framework.

You can download your free copy of @From Stanford to Ss2Q - Essential Information for Tutors, Trainer and Coordinators in England: A comparative overview of the respective fidelity and quality assurance requirements of Stanford University and Ss2Q' from here or visit www.selfmanagement.co.uk/stanford-ss2q where you will find a fuller version of this article.

Have something to say...?

Do you have something you would like to say? Or a topic you would like other people's opinions on? Or would just like to get to know a few more people in the self-management community?

Then why don't you join our discussion forums. There are a number of discussion forums now set up on our new website www.selfmanagement.co.uk/forum However, if the topic you would like to talk about isn't there you are welcome to set up a new discussion. The forums are easy to use and at present anyone is welcome to join in. The forums are un-moderated and so needless to say please keep postings respectful but other than that we encourage you to get chatting!

Caring with Confidence

We have recently updated our new website with all of the Caring with Confidence resources and materials from NHS Choices. Take a look at http://www.selfmanagement.co.uk/caring-confidence-0 In time, we hope to be able to offers more guidance and information on further.

Festive Fun

The holidays are coming and so we thought you may be interested in something a bit more fun... So why not try our short quiz and test out how much you know about Self-Management!

Who initially developed the CDSMP (Generic) programme?
How many weeks is the EPP CIC New Beginnings programme?
Which organisation ran the first ever self-management pilot for people living with Arthritis?
How many years has the Department of Health's Self-Care week been running in England?
When did the NHS originally pilot the Expert Patients Programme?
How many stages are there in the 'symptom cycle'?
In which country is Stanford University?
What does QISMET stand for?

Click here for quiz answers www.selfmanagement.co.uk/self-management-today-december-issue-quiz-answers

How many did YOU get right???

Newsfeed

We scour the press for topical articles and publish them in a regular newsfeed on our new website http://www.selfmanagement.co.uk/news See below for a round up of what we found. All you need to do is click on the headlines below to go directly to the article online. If you ever come across any interesting stories that you think other tutors would like to read then please let us know and we will add it into the next issue. These can be anything from press including TV/radio programmes or articles in newspapers, magazines, journals or other publications. Either email admin@selfmanagement.co.uk or call 01225 731421.

BBC

The Daily Express

The Daily Mail

The Guardian

The Independent

The Telegraph

BBC - Radio 4

NICE

NICE gives green light to treatment for type 2 diabetes - 29th November 2010

Department of Health

Youtube

Why now? The opportunity for social enterprise

* News items are selected based on their relation to the wider issues around health and self-management. Self-Management Today is not biased or supportive of any particular view, opinion or political party.

What's in the news?

Self-Management Today - December 2010