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Self-Management Today - July 2010
Issue 4 July 2010
Hi everyone
Welcome to the fourth issue of Self-Management Today. You will be pleased to know that this issue is literally packed to the brim with news for you! We noticed from the last issue that the links to other articles in the national press were very popular so we have had another go at scouring the media for more items of interest. If you ever come across anything please let us know as we would love to hear from you and add in your contributions!
Thank you to those of you who have taken the time to complete the form that we recently mailed out. Not to worry if you haven't received a form as this was not sent to everyone on the register. Those that haven't returned the form yet can we ask that you please do take a few minutes to do this. We know it is yet another form, but it is very important that the information we hold on the National Register of Self-Management is current and accurate!
We hope you enjoy the newsletter!
Department of Health Update
At the beginning of June, the new Secretary of State (SoS) for Health, Andrew Lansley, set out his ambition for patient-centred care. His vision included positive messages around improving health outcomes, engaging and empowering professionals, focusing on health and well being of families and communities, and the connections between health and social care - all key priorities for the new Coalition Programme. As part of his vision, SoS outlined that a combination of information and choice is the key to driving up standards and holding local people to account. Shared decision making between patients and professionals also featured high on his radar. This is an essential component in involving patients in decisions about their own care and key to embedding personalised care planning and support for self care across the NHS. You will be pleased to hear that he outlined the importance of supporting patients to self care and acknowledged that patients themselves are experts in understanding their own care and have the greatest knowledge about their own experience.
Please visit the web link for a complete transcript of the SoS's speech: http://www.dh.gov.uk/en/MediaCentre/Speeches/DH_116643
The Department of Health will update in more detail in the next issue as the direction Ministers wish to take for Long Term Conditions becomes clearer.
Update from the T Trainers
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By Ian Darling, T Trainer Group Chair
The T Trainer group consists of a team of trainers that have all been assessed and approved by senior staff at Stanford University in California. They are all highly experienced and capable trainers who aim to carry forward and maintain the self-management programmes licensed by Stanford University in the UK.
Although representing a variety of organisations they are an independent group that does not owe allegiance to any one organisation but represent best practice and support across the industry.
The group is linked to Stanford University by virtue of the title T Trainer (or Trainer of Lead Trainers -TOLT) which can only be granted by Stanford University Patient Education Programme. They act as a conduit for experiences, views and suggestions for change between self-management programmes in the UK and Stanford. Alongside the National Register of Self-Management and QISMET, they are responsible for ensuring that licensed organisations within the UK fulfil the conditions of their licence.
The group adheres to Stepping Stones to Quality (SS2Q) as the quality standard for all Stanford self-management programmes within the UK. The accreditation of the members of the group is through SS2Q and they act as a bridge between the UK’s standard and Stanford’s Fidelity Manual.
Members of the group are the only individuals within the programme in the UK able to sign off Lead/Master Trainers and individually or collectively offer help and support to Lead/Master Trainers within the UK.
The group hold regular meetings and, as the senior trainers within the Stanford programme, these meetings ensure standards and best practice are kept up throughout the country. Current members of the group are:
Jane Cooper (EPP CIC)
Sarah Cronin (EPP Wales)
Ian Darling (Independent – Talking Health) Chair
Phil Greenham (Body Positive NW)
Lynne Kalman (Independent)
Ian McNeil(Talking Health)
James Miller (Living Well)
Brendan O’Rourke(Tower Hamlets PCT)
Jim Phillips(EPP CIC)
Jean Thomson(Talking Health)
If you would like any further information or would like any help, advice or support please send an email to Email address admin@ttrainergroup.co.uk
In photo: From left - Ian Darling and Brendan O'Rourke at the Lead Trainer Conference in Edinburgh 2009 (Credit - Arthritis Care Scotland)
Positive Self-Management Partnerships: Introducing the North England Positive Self-Management (PSM) Consortium
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By Phil Greenham, Chief Executive Officer, Body Positive North West
Body Positive North West (BPNW) is a voluntary sector, user led, HIV charity that has worked across the Greater Manchester area for the last 25 years. In Spring 2010 four charities came together to secure the delivery of the seven week HIV specific positive self-management programme (PSMP) by working together and forming a coalition. Those four charities are BPNW, SHIVER, +ME Barnsley and BHA Skyline.
BPWN was the first voluntary sector agency in the North of England to deliver the disease specific positive self-management course. BPNW were licensed by Stanford University in 2002 and have delivered the popular PSMP almost continuously since that time; now having a skilled team of trainers and tutors available to cover the North of England. Their partnership with EPP CIC has given extensive experience in managing data collection, delivering courses and training tutors.
The PSMP differs from the main EPP training programme in that it is held over seven weeks rather than six. The course content is essentially the same but there is additional specific information relating to HIV; medication, viral resistance, laboratory tests and a session on disclosure and intimacy.
In 2005, Manchester University Care Research and Development Centre (NPCRDC) reviewed delivery and undertook a critical case analysis. They gave a clear steer and identified the value of the course being delivered by the voluntary sector.
Key findings were:
1. People placed a high value on social networking and breaking social isolation. Having a physical place to meet outside the course was important to develop social networks
2. Course leaders could signpost people to relevant help and advice provided by the organisation
3. There was an impact of the course on the organisation itself, organisations were perceived by course participants as becoming more socially inclusive
4. The voluntary organisation provided resources and support for dealing with social problems not dealt with by the course. It also acted as a conduit for collective action
Download the Executive Summary (38) from
The formation of the North England PSM Consortium ensured that the courses, supervision and support delivered from voluntary organisations and coordinated by BPNW is available to a wider area. This means people living with HIV as far afield as Lancashire, Leeds, Manchester and Barnsley have access to Self-Management programmes.
One person who has recently completed the PSMP tutor training progamme said "...it's great to know that I can get support and help from such a wide variety of voluntary organisations that are all committed to self-management. I'm also really interested in going on to do the substance and alcohol misuse course. It feels like we are all working together at last!"
For more information about the North England PSM Consortium please contact Emma on 0161 882 2200 or email Phil on phil@bpnw.org.uk
Watch this space for further developments! http://bpnw.org.uk/services/positive-self-management
*International Focus* Self-Management in Hong Kong
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By Ruby Ho, Tutor, EPP CIC. (Formerly Department Manager - Occupational Therapy, MacLehose Medical Rehabilitation Centre, Hospital Authority. Member - Rehabilitation Committee, Hong Kong Society for Rehabilitation and Vice Chairperson, Hong Kong Occupational Therapy Association)
According to recent statistics, 17% of the population of Hong Kong are living with a long-term health condition. 95% of those managing at home. There is a big demand for people living with chronic health conditions to be able to positively manage their own long-term health, at home in the community. This is what the Health in Action (HIA) project hopes to achieve.
The HIA is a Hong Kong version of the Chronic Disease Self-Management Programme (CDSMC / generic course). The main training and monitoring agency is the Hong Kong Society for Rehabilitation (HKSR). Since 2002, when CDSMP was first introduced to Hong Kong, over 300 generic CDSMPs have been run, more than 100 lay leaders have been trained, 3 Master Training Progammes (similar to Lead Trainer in the UK) have taken place and 10 disease specific courses developed.
Self-management studies carried out in Hong Kong over the last 10 years confirm that CDSMP can be as effectively applied in Chinese populations as it can in Western societies. The studies have shown some key outcomes from the programme: enhanced self-efficacy, sustainable behavioural change, improvement in health outcomes, better psychological well being and improved utilisation of health care resources.
Hong Kong is an important window to China. HKSR has been deeply involved in training rehabilitation personnel in China since 1990, so they were uniquely placed to facilitate the movement of self-management for people living with long-term conditions in mainland China. In collaboration with the National Centre for Chronic and Non-communicable Disease Control and Prevention - China Centre for Disease Control, two series of CDSMP Leader training were conducted in 2007 and 2008. Since then, over 13 provinces in mainland China have piloted the CDSMP, with very positive results. In the not so distant future, China should be able to steer its own course of self-management and run the programmes itself.
In 2008, a team of delegates from HKSR visited the UK to ensure further and better development of self-management in Hong Kong, visiting and learning from various organisations including EPP CIC, The Department of Health and other community organisations. They not only learned from their counterparts in the UK but also established strong bonds with the organisations and people they met. The HKSR delegates believe that by keeping abreast of the global trends and partnering with relevant health and community groups they can better serve the Hong Kong community leading and facilitating the movement of self-management in Hong Kong.
(In photo - CDSMP session in Hong Kong)
Volunteers' Week
June was the month of Volunteers' week, a week dedicated to raising the profile of volunteering and to nationally recognise the efforts and contribution of the country's volunteers.
EPP CIC held regional events as a thank you to those tutors that give up their time facilitating self-management courses throughout the country. Read on for some snippets from the events!
Martin Broad, the newly elected Chair of Bournemouth 2026 Health and wellbeing Consultation Forum, of which EPP is a partner, was a guest for afternoon tea at Highcliffe Castle in Christchurch. As the guest of honour he presented volunteers with certificates of achievement. Seven volunteers were nominated for Volunteers' Centre Awards.m Our congratulations to Alan Lindsay, Eardley Bryan, Mark Stafford Watson, Liz Galfskiy, Tracey Marsh, Peter Johnson and Susan Howe.
In addition the Southern regions celebrated National Carers' Week across the Surrey and Sussex regions. Various display stands were set up in very different environments - one in a disused council shop in Chichester and one at Ashburnham Place
The London region volunteers were treated to an afternoon tea and scones at the Tate Modern. After devouring too many of these everyone thne had a mosey around the Gallery. A very cultured and informative afternoon was had by all!
In late June, the Eastern Region took their volunteers to a day out at Colchester Zoo. The tutors came from as far as Rayleigh in SOuth East Essex, Bury St Edmunds and Sudbury. The event bought together some tutors that have experience of delivering over 40 courses with those that had only recently been trained. David Breen, who led the event, said "it was great to just relax and enjoy the beautiful surrounds of the zoo".
On 23rd July the Northern Region are holding a tutor and volunteer event at the Castlefield Rooms in Manchester. The day will consist of speeches from Labour MP Barbara Keeley and some of EPP CIC’s tutors followed by a summer BBQ. Fingers crossed the BBQ weather stays around for them!
For further information on Volunteers Week visit www.volunteersweek.org.uk
How to set up your own self-management email address
Do you want you own self-management email address? Would you like a separate email address for your tutoring work? It is quite simple to set up email addresses, whether using online webmail services such as Gmail, Yahoo or Hotmail or by setting up a new email address via your Internet Service Provider (ISP) – like btinternet.com, o2.co.uk or tiscali.co.uk.
Most ISPs offer free POP3 email addresses when you sign up. Emails are retrieved and downloaded to your computer using an email client such as Microsoft Outlook or Mac Mail. Many ISPs will allow you to create a number of email addresses, so you can have a personal and a professional email address. To find out if you have more than one email address available, contact your ISP.
Web-based services are slightly different from ordinary e-mail services, as they are accessed exclusively through the web. Webmail services are flexible and accessible from any computer regardless of where you are. They are very simple to set up, most are completely free and of course you can have as many as you like. The three most popular webmail providers are Windows Live Hotmail, Yahoo! Mail and Gmail (Google Mail). Why not use a webmail address for all your work, tutoring or volunteering communications whilst keeping your personal email address for home?
There are some simple tips to ensure that your email address looks professional.
• Use your full name - janesmith@gmail.com, jane_smith@hotmail.comjane.p.smith@yahoo.co.ukall allow the reader to quickly identify who they are talking to and of course reduce the confusion that could arise from receiving an email from jane@hotmail.com. A full name simply looks more professional
• Nicknames are for home - pinkpoodle@gmail.commight have been fun when you first set it up, but not for work.
• Include your role - you can choose to use any words you like in an email address, assuming no-one else has go there first. Try tutor-JS@yahoo.co.ukor perhaps selfmanagment_tutor@gmail.comor leadtrainer.epp@hotmail.com
• Set up an email signature - you can create a standard signature that is applied to all emails that you send. Here you can include you telephone contact numbers, the days that you work or are available to take calls and even the next course you are delivering. In MS Outlook you can set up a signature by going to Tools > Options > Mail Format > Signatures. Most webmail providers will allow you to set up a signature to be applied to all mail you send. Look in the 'help' pages or 'Account settings' for instructions.
NEW!!! NRSM website
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Before we started to develop the National Register of Self-Management we spent some time talking and more importantly, listening to tutors, assessors and Lead trainers currently delivering courses, whether as volunteers, freelance seasonal trainers, or health professionals. Some clear messages soon emerged.
There was general agreement that there was very little information available about what self-management is, who provides it and how someone can become a provider or deliverer. This is certainly something that we hope to address on the new www.selfmanagement.co.uk website. The new site is set to be launched at the end of July and we hope that it will act as a central information point where tutors and trainers can find the latest news, current advice, best practice and information about self-management in the UK.
One of the key messages from our research was that many tutors delivering courses around England sometimes felt a little isolated. There is no central office, or water cooler where colleagues can meet and chat about the issues affecting tutors and trainers. This is where our new forum will come into its own. This is an ideal place to exchange ideas, views and opinions about courses, participants, providers, or any subject close to your heart with like minded people. Only members of the National Register will be able to post messages in the forum, so if you are in need of some advice or are bursting to get something off your chest, or just want a sympathetic ear, this is the place for you.....
The News section on the site will have articles and links to current news items in the daily, national and local press which are of interest to self-management professionals. The most current articles will appear on the main page with an archive below. You can share your views and read the opinions of colleagues about a news item by clicking on the links to the relevant forum discussions topics. Every other month we will include major news items and a round-up of the comments from the forum in Self-Management Today.
As we add pages we will develop an information section that provides detailed information on professional and personal development, giving clear information about pathways of development – tutor, assessor or lead training; highlighting training opportunities, where to train and how to get involved. The new library of literature will house a growing collection of useful resources to download and or print: course participant register, how to become and assessor, assessment, monitoring and supervision records, how to apply for learning credits and many useful forms and resources for tutors and trainers.
www.selfmanagement.co.ukis a site dedicated to tutors, trainers, providers, PCT administrators, dedicated EPP teams around the country... people like you.
Visit www.selfmanagement.co.ukand get involved!
Newsfeed
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We have been scouring the press for topical articles in the news on health and self-management. Click on the headlines below to go directly to the article online. If you ever come across any interesting stories that you think other tutors would like to read then please let us know and we will add it into the next issue. We
can also link up to any video clips or footage that you find.
BBC
- New goals to replace NHS targets - 2nd July 2010
- Cambridgeshire Gives... Celebrating 25 years of Volunteers' Week - 1st July 2010
- Cornwall and Isles of Scilly illness website launched - 1st July 2010
- Tea and coffee 'protect hearts' - 18th June 2010
- Heart attack admissions fall after smoking ban - 9th June 2010
- Brain regulates cholesterol in blood, study suggests - 6th June 2010
- Asthma risk 'linked to burgers' - 2nd June 2010
- Midnight snacking damages the teeth, experts warn - 2nd June 2010
- Mental health research is 'incredibly underfunded' - 2nd June 2010
- Watchdog backs a minimum price for alcohol - 2nd June 2010
- World Cup attacked for 'unhealthy sponsors' - 1st June 2010
- Men's skin cancer death rate doubles over 30 years - 30th May 2010
- Comparing income with peers causes unhappiness - 29th may 2010
- Brush teeth to 'prevent' heart disease - 28th May 2010
- Heroin therapy call for 'chronic addicts' - 28th May 2010
- Rheumatoid arthritis 'on the rise in women' - 26th May 2010
- Health committee split on alcohol pricing - 27th May 2010
- Varifocal fall risk 'can be cut' - 26th May 2010
- NHS 'reorganisation' is outlined - 26th May 2010
- Weight 'key' in kidney transplant success - 22nd May 2010
- Heart attack survivors 'fear sex' - 21st May 2010
- Tesco backs minimum price for alcohol sales - 21st May 2010
- 'Sausage not steak' increases heart disease risk - 18th May 2010
- Post-natal depression in fathers 'often undiagnosed' 18th May 2010
- Sight and hearing loss groups launch partnership - 18th May 2010
- Stress link to financial squeeze - 17th May 2010
- Urban pollution 'raises blood pressure' - 15th May 2010
- Gum disease treatment may help diabetes - 12th May 2010
- Eating nuts can lower cholesterol, say experts - 10th May 2010
- Real life stories – living with ME
The Telegraph
- Budget 2010: health checks on disability claimants and changes to housing benefit - 22nd June 2010
- Maintaining muscle tone with multiple sclerosis - 22nd June 2010
- Large numbers of men 'suffer from post-natal depression' - 19th May 2010
- Zumba your troubles away - 14th May 2010
- Dental treatment may help diabetics control condition: research - 13th May 2010
The Guardian
- More power to patients - 13th May 2010
- Broaden the discussion of mental health issues - 10th June 2010
The Express
- Diabetes: More than 1m people do not realise they have it - 30th June 2010
- A stroll could save your life - 29th June 2010
- Hospital ban on sugar in patients' tea - 28th June 2010
- Rheumatoid arthritis drugs u-turn - 25th June 2010
The Independent
- Get fit with a toy from your past - 28th June 2010
- Popular fruit and vegetables 'not the healthiest' - 26th May 2010
The Daily Mail
- One in four damaging their health by working all day without breaks - 10th June 2010
- Relaxation ‘can cut risk of breast cancer death’ - 9th June 2010
- Getting mad is good for your health - 2nd June 2010