Self Management Today - September 2010

Issue 5 September 2010

Welcome to our fifth edition of Self-Management Today. We'd like to welcome everyone that has recently joined the National Register of Self-Management (NRSM) especially those from Caring with Confidence and Co-creating Health. Unfortunately, these two projects have recently come to an end but we hope that these projects will continue in different formats as things become clearer following the changes by the new coalition government.

Again we have another packed issue for you. Craig White, the Clinical Lead at the Scottish Government discusses self-management across the border in Scotland. The MS Society introduce their new website to help people with long-term health conditions find and keep in work. There is important news for Lead Trainers as information is included about the new Lead Trainer manual and the essential training sessions that you must attend! We also sadly say a fond goodbye to Frank Roy Jones a pioneer of self-management in England.

On another note, to make up for the lack of national events in 2010, we are looking at the possibility of hold a national conference for self-management delivers in 2011. To help us decide whether or not to go ahead we need some feedback from you. Please click on the following link to complete a very short survey. Thank you in advance for your help!

We hope you enjoy...

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Department of Health Update

 

The recently published White Paper Equity and Excellence: Liberating the NHS, sets out the Government's long-term vision for the future of the NHS and focuses on the Secretary of State’s priorities. These include a patient-led NHS; delivering better health outcomes; and a more autonomous and accountable system. The vision is clear that patients and the public will be put at the heart of the NHS through greater control. Supporting patients to take more responsibility and empowering professionals to support people to feel more confident about their self care choices is central to improving outcomes and completely supports the principle of shared decision making: no decision about "me without me" as part of the new Government's vision

Go to a full version of the White Paper Equity and Excellence: Liberating the NHS.

The DH will update in more detail in the next month's issue as the direction Ministers wish to take for long-term conditions becomes clearer.

 

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 CALLING ALL LEAD TRAINERS! - New Lead Trainer manual

Over the last few months the T Trainers have been working on a new Lead Trainer guide. The process started with a 3 day workshop led by Kate Lorig. The objective is to have a single UK manual to help ensure consistency of training and standards across all organisations running Stanford courses and came about through requests from Lead Trainers and others who often found they were using different versions of the Lead Trainers manual.

The development process has been led and funded by EPP CIC. Arthritis Care and EPP Wales have also contributed along with individual T Trainers giving their time and support. The new guide has had a few trial runs and is now having its final proof read and edit.

The new guide will be made available in January 2011 to licensed organisations and their Lead Trainers. As part of the rollout all Lead Trainers are required to attend a Lead Trainer supervision being held between January and March 2011 led by the T Trainers. The supervision will satisfy your annual Lead Trainer supervision needs and also include training on the new manual.

The supervisions will take place as follows:

• Thursday 20th January - London
• Monday 21st January - Birmingham
• Monday 31st January - Bath
• Thursday 3rd February - Warrington
• Thursday 24th February - York
• Monday 14th March - Bury St Edmunds
• Tuesday 22nd March - London

A new version of the manual will be sent to you approximately two weeks before the supervision. This should give you some time to familiarise yourselves with the new manual to help you get the most out of the day.

We will be contacting all Lead Trainers registered on The National Register of Self-Management about the training sessions in due course and will provide details of costs, booking arrangements etc.  However, if you have any questions or would like to register your interest in advance or, if you are not currently on the register but would like to attend the sessions then please email admin@selfmanagement.co.uk

We expect as the guide gets used there will be some further small changes. Lead trainers will be updated through the National Register where any changes will be available to download.

**These supervision and training sessions are ONLY available through the National Register of Self-Management.**

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 All change in the NHS - An invitation to help with a quick piece of research

Many of you will have heard about the changes happening in the NHS. Primary care trusts are going and GPs will be deciding what services are available in your local area. The Department of Health is running a consultation on these changes - some of these have the potential to determine the ongoing future of self-management programmes. The NRSM is keen to ensure that those living with long-term health conditions have a voice in these consultations.

Below is a link to a questionnaire - please help us ensure self-management courses are here to stay by completing the questionnaire. Your responses to the questions will form the basis of the response we make to the Government. The response we send in to Government will be published on the NRSM website. One thing we can all do is tell our own GP what benefit we have gained through EPP, and please remember to encourage course participants to write to their GP as well. 

Dear NHS user.

As you may be aware the Government is proposing significant changes to the way the NHS is run and how patients are given information and treatment.

These changes are currently out for consultation. We are keen to comment on these changes and would value your help in this. We have created a questionnaire that covers the main points relating to long-term conditions. Please take some time to complete this survey. All responses are anonymous. To complete the survey click on the following link or paste it into your web browser

http://www.surveymonkey.com/s/NHSchanges

Read the full White Paper Equity and Excellence: Liberating the NHS and consultations.

Regards

Jim Phillips
Policy Director - EPP CIC

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 Caring with Confidence

A big welcome to Caring with Confidence (CwC) facilitators. CwC was a Department of Health funded program for carers. Funding for this programme comes to an end in September. However the program has been life changing for many carers. The National Register of Self-Management will act as a focal point going forward for CwC.

Update on support to facilitators and providers.

Three dates have now been provided to train Facilitator Coaches (Facilitator Coaches provide the support to the new facilitators but do not train them ). In addition, it is hoped that dates will be provided for a Train the Trainer training. This will ensure, going forward,  that providers will have the full capacity to train their own facilitators.
Please note that only experienced CwC facilitators would be eligible at this stage to be trained or people with significant training/coaching skills.

From September the National Register of Self-Management (NRSM) via it's website: www.selfmanagement.co.uk will act as a central point of contact for sharing resources and accessing discussion groups. It will hold a listing of CwC facilitators, coaches, trainers etc and hence act as a resource for any organisation needing to access training, support, supervision etc. The web site is currently being updated from the current version to support this.

Coaches and trainers fees may vary between individuals and organisations.

Facilitators and organisations will be able to use the NRSM site as a way of sharing best practice and hopefully collaborating in the updating of training etc in light of evaluation and user feedback.

New facilitators may be added to the NRSM as they are trained and a Passport to Practice (P2P) will be issued upon evidence of training. In addition, providers will be able to access the NRSM to manage their facilitators and renew P2P.

These developments will take some time to put in place but there will be regular newsletters to keep you all informed.

All CwC materials will be freely available from the NHS Choices (care section) website. A best practice guide is being produced to go with this.

Training facilitators

Providers who wish to continue to have facilitators trained will be able to access training via the NRSM. Trainers and coach fees for training may vary. There is in place a network of coaches and trainers across the country that will be accessible via the NRSM team. Facilitator training will be tailored to meet the specific needs of an organisation including Train the Trainer.

From the 28th September all services will be on contracted fee basis.

To maintain the Passport to Practice it is expected best practice that facilitators attend some form of supervision and skills update every 12- 18 months and ideally have some form of observation of practice.

Completely new providers will be able to access capacity building and start up support via the NRSM.

Although under the post September arrangements there are no restrictions on who can carry out training, any need for them to have any previous experience etc. It is hoped that these arrangements will provide a way forward that is affordable and ensures that the CWC sessions can continue to be provided.

Any questions then please contact Linda Cairns on 07500 104610 or Jim Phillips on 07793 154824 or, The National Register of Self-Management team on 033 344 1800, 0845 8622 410 or admin@selfmanagement.co.uk

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 Self-Management in Scotland

By Professor Craig White - Clinical Lead, Scottish Government. Mrs Christine Hoy - Programme Manager, Scottish Government. Mr Kevin Geddes - Director, Self-Management Long-Term Conditions Alliance Scotland

Scotland’s first ever Self-Management Week from 4th – 8th October 2010 will celebrate the many initiatives, programmes and projects across Scotland supporting people living with long-term conditions, and their unpaid carers, to manage their conditions better and ultimately enjoy a better quality of life.

A series of events and awareness raising resources will bring together partners across Scottish Government, health and social care, voluntary and community organisations as well as individuals. The week aims to build upon ‘Gaun Yersel – the Self Management Strategy for Scotland’, and the recent NHS Scotland Quality Strategy to focus on person centred approaches to healthcare – and highlight the many benefits of the self-management approach.

The Self-Management Strategy, developed and written by people living with long-term conditions, was launched in 2008. Over the past two years the Long-Term Conditions Alliance Scotland (LTCAS) have been administering the £4million Scottish Government Self-Management Fund. Eighty-one diverse voluntary and community organisations, supporting a variety of conditions and equalities groups, have shared the allocation of funds to develop and deliver a variety of self-management approaches, programmes, toolkits and resources across Scotland.

All the NHS Boards across Scotland have been working to transform the way in which they deliver services for people living with long-term conditions. The Long -erm Conditions Collaborative has supported work to increase the provision of self-management support within NHS Scotland. NHS Ayrshire and Arran has also been working with the Health Foundation to promote mutuality and new models of healthcare to lead a change in the traditional patient/clinician relationship, encouraging partnership and co-creation.

People living with long-term conditions have taken a lead role in improving access to support and sharing local resources through the Access to Local Information to Support Self-Management (ALISS) project, backed by the Scottish Government. The project has highlighted the links between good health literacy and the ability to effectively self-manage.

Many of these initiatives, and more, will be showcased during Self-Management Week. Future developments will be also be proposed and discussed at events involving all the partners in promoting self-management support at the Scottish Parliament. For more information please visit the LTCAS website www.ltcas.org.uk

For other information on Self-Management in Scotland contact Christine Hoy at Christine.Hoy@scotland.gsi.gov.uk

Useful Links and Resources

Self-Management and Rehabilitation - www.enablinghealth.scot.nhs.uk/home.aspx
Co-Creating Health in Ayrshire and Arran - www.health.org.uk/current_work/case_studies/cocreation_in.html
Long-Term Conditions Collaborative (Scottish Government Improvement Programme) - www.scotland.gov.uk/Topics/Health/NHS-Scotland/Delivery-Improvement/1835/210369
Long-Term Conditions Collaborative – Improving Self-Management Support - http://www.scotland.gov.uk/Resource/Doc/274194/0082012.pdf
ALISS Health Literacy Report - www.aliss.scot.nhs.uk/wp-content/uploads/ALISS-Health-Literacy-Report-2010-01.pdf
Health Literacy Scoping Report - http://www.scotland.gov.uk/Resource/Doc/296717/0092261.pdf
ALISS video -  http://vimeo.com/11986849

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 Newsfeed

We have been scouring the press for topical articles in the news on health and self-management. Click on the headlines below to go directly to the article online. If you ever come across any interesting stories that you think other tutors would like to read then please let us know and we will add it into the next issue. These can be anything from press including TV/radio programmes or articles in newspapers, magazines, journals or other publications. Either email admin@selfmanagement.co.uk
or call 01225 731421.

 

BBC

• Non-stick pan chemicals 'may raise child cholesterol' - 7th September 2010
• Study shows ME/CFS 'virus link' found in children - 7th September 2010
• Bipolar disorder 'not to blame for violent behaviour' - 6th September 2010
• Alcohol consumption 'continues to fall' - 3rd September 2010
• Puzzles and crosswords delay dementia, study suggests - 2nd September 2010
• Memory loss 'should not be ignored' - 24th August 2010
• Don't label heroin users as 'junkies' - Drug Commission - 24th August 2010
• Non-emergency 111 health number to be piloted - 23rd August 2010
• Doctors make plea over prescriptions system - 23rd August 2010
• NHS consultants could see bonuses curbed in a review - 20th August 2010
• Kidney transplant policy change 'could save hundreds' - 19th August 2010
• Health visitors 'can stop post-natal depression' - 17th August 2010
• Women beer drinkers 'increase psoriasis risk' - 16th August 2010
• Childhood stress leads to adult ill health, studies say - 15th August 2010
• Personal responsibility health agenda 'welcomed' - 2nd August 2010
• Ministers to review curb on doctors hours - 2nd August 2010
• One lie-in 'not enough to counter sleep loss' - 1st August 2010
• Single benefit payment among 'radical' welfare plans - 30th July 2010
• Addiction drugs may boost weight loss - 30th July 2010
• Fears public health may be hit in shake-up of NHS - 29th July 2010
• Private clinic proves cheaper for NHS patients - 29th July 2010
• NHS should use term fat instead of obese, says minister - 28th July 2010
• Drinking alcohol can 'reduce severity' of arthritis - 28th July 2010
• NHS in Bristol area encourages birth at home - 27th July 2010
• Motherly love 'does breed confidence' - 26th July 2010
• Diabetes costs 'out of control' - 26th July 2010
• Health watchdogs 'are to be axed' - 26th July 2010
• Hospitals 'eyeing private market' - 13th July 2010
• Low vitamin D levels 'linked to Parkinson's disease' - 12 July 2010
• Big head 'may protect against dementia' - 12 July 2010
• NHS 'to undergo radical overhaul‟ 12 July 2010

The Mail

• The cruel cost of ignoring diabetes: Jane lost an arm and two legs to the disease because, like so many, she didn't take it seriously – 7th September 2010
• 'Cyberchondriac' nation: Millions of Britons worry themselves sick after misdiagnosing symptoms on Google – 1st September 2010
• The toxic truth about vitamin supplements: How health pills millions take with barely a second thought can do more harm than good – 24th August 2010
• One daily glass of wine 'can double risk of breast cancer' – 24th August 2010
• Dr Ellie Cannon: Lung disease that costs UK 24million work days - 22nd August 2010
• We'll 'eat for two' if we want to. We don't need to be told off for being obese: Andrea McLean hits out at the government – 22nd August 2010 Psychedelic 'party drugs' like LSD could combat depression and treat cancer, say top scientists – 19th August 2010
• Imposing NHS spending cuts 'could help people living unhealthy lives' – 18th August 2010
• Stay healthy on holiday: The remedies the experts won't leave home without... - 17th August 2010
• Children who walk to school 'are less stressed in exams'- 12th August 2010
• GPs boycott return to out of hours care as only one in eight will take on the extra work - 5th August 2010
• Beware high heels! How stilettos compress the joints and could cause osteoarthritis – 4th August 2010
• They are supposed to save lives, but could a blood transfusion give you a heart attack? - 3rd August 2010
• EU rule limiting doctors to 48 hour week is „risking lives‟ - 2nd August 2010
• I pray I haven‟t inherited Mum‟s mental illness, by N-Dubz Tulisa - 1st July 2010
• Dr Ellie Cannon: What is NICE, any why does it have a nasty reputation? - 31st July 2010
• Cash crisis hospital paid NHS chief £2557 a day to cut costs! - 30th July 2010
• Now right to work past 65: Firms banned from forcing employees to retire - 29th July 2010
• Tis the season to be grumpy, (as any teenager will confirm) - 29th July 2010
• One third of young people suffer from high blood pressure thanks to drinking and lack of exercise - 30th July 2010
• New mental health 'bible' will lead to almost everyone having a disorder, warn experts - 28th July 2010
• Are you a diabetes timebomb? – 27th July 2010
• Do doctors give up on you when you get your bus pass? - 13th July 2010

The Guardian

• Substance abuse, not mental illness, causes violent crime – 7th September 2010
• Towards a joined-up health service - 1st September 2010
• How to get public health policy right: listen to the public – 19th August 2010
• NHS funding should not be ringfenced, says citizens' jury - 10th August 2010
• Mental health: The invisible illness - 4th August 2010
• Tabloids editors need educating in basic medical reporting – 4th August 2010
• Coalition's first crowdsourcing attempt fails to alter Whitehall line – 3rd August 2010
• Warning over £106bn bill for old-age care - 27th July 2010

The Telegraph

• £50,000-a-year can buy you happiness – after that its down to you – 7th September 2010
• 'Magic mushrooms' can improve the lives of cancer patients – 7th September 2010
• Why not brushing your teeth can kill you - 6th September 2010
• Sleep-deprived teenagers 'triple chances of mental illness' by spending nights online - 2nd September 2010
• Daily fish oils could save lives of 10,000 heart patients - 2nd September 2010
• 'Brisk walking' could prevent 10,000 cancers a year - 31st August 2010
• NHS 'quality standards' set out by Andrew Lansley - 31st August 2010
• Nicotine in cigarettes linked to breast cancer - 24th August 2010
• Relationships are good for your health – 19th August 2010
• GP's 'could help tackle incapacity benefit problem' – 18th August 2010
• Health visitor shortage 'leading to postnatal depression' - 18th August 2010
• Contraceptive pill 'increases parts of brain' – 18th August 2010
• Free school milk: the white stuff might not be the right stuff - 17th August 2010
• Sons 'with fond childhood memories of fathers more stable' – 13th August 2010
• GPs must cut back on medicines: NHS officials - 7th August 2010
• Unison seeks judicial review over proposed NHS reforms - 6th August 2010
• Additives in sausages and bacon 'increase bladder cancer risk' - 2nd August 2010
• Manchester attempts to impose minimum price of alcohol - 2nd August 2010
• Barclays Cycle Hire Scheme: painting London 'Tory blue' or putting colour in a whitewash? - 30th July 2010
• Calcium pills 'increase heart attack risk' - 30th July 2010
• Gene that causes Parkinson's disease identified - 28th July 2010
• Being a little odd doesn't mean that I'm mentally ill - 28th July 2010
• Hospitals to be allowed to 'earn more money' from private patients – 27th July 2010
• Homeopathy will not be banned by NHS despite critical report - 26th July 2010
• Nurses 'reminded of duties' - 26th July 2010
• Axe falls on NHS services - 24th July 2010
• Now I know what it is really like being an NHS patient - 5th July 2010

The Observer

• Children's sight at risk as parents and schools shun eye tests – 22nd August 2010
• Top GP condemns Britons for recklessly neglecting their health - 8th August 2010

The Independent

• Men twice as likely as women to be forgetful in old age, says study - 7th September 2010
• Government ignored our advice on homeopathic remedies, say experts - 3rd August 2010
• All frontline soldiers 'to get psycho-screening in bid to cut combat stress' - 1st August 2010

The Express

• Sleep easy: Lie-ins are good for us - 2nd August 2010
• Can men go through the menopause? - 27th July 2010

LA Times

• Drinking may lessen the effects of rheumatoid arthritis, study finds - 29th July 2010

Yeovil Express

• Chronic Fatigue Syndrome and ME conference in Yeovil - 2nd September 2010
• Outstanding volunteers are thanked by hospital - 31st July 2010

Bridgwater Times

• Students get dancing to a healthy rhythm - 6th August 2010

Central Somerset Gazette

Lung disease patients join network to gain advice on conditions - 5th August 2010 - Somerset patients affected by chronic lung disease came together with doctors, nurses and health managers for the county's first Respiratory Network meeting. Some 70 patients and their carers attended the event, which was organised by NHS Somerset, at Taunton Racecourse (No link available)

DID YOU SEE.....

As well as the written press we have also been keeping an eye out on the TV for various programmes that may have been interest. By the time of going to print some programmes may no longer be available online for viewing

• BBC 1 - Thursday 9th September - Small Teen, Big World - A year in the life of 16-year-old Jasmine Burkitt, who is just 3ft 8in tall.
• BBC 3 - Tuesday 10th August - Tulisa: My Mum and Me - Documentary about young people caring for parents with mental health problems featuring chart topping N-Dubz band member Tulisa Contostavlos
• BBC 3 - Wednesday 21st July - The Blind Me - Follows four young blind people on their journey to adulthood

* News items are selected based on their relation to the wider issues around health and self-management. Self-Management Today is not biased or supportive of any particular view, opinion or political party.